Saturday, December 18, 2010

Coeliac Diagnosis Confirmed

I found out on Monday night that the biopsy confirmed that I have coeliac's disease. If you haven't been following my blog for a while you might not be aware that most of this year has consisted of me trying to find out. I actually had another biopsy at the start of the year which didn't show anything. I then ate gluten free for months before another specialist insisted that they test again.

The strange thing is that when I was eating gluten initially there was no obvious side affects. It wasn't like I ate bread or even gluteny mock meat and felt sick. I just some random bad days. Also when I went gluten free for a few months I didn't really feel much better. But when I returned to eating gluten for the second biopsy I spend most of the month feeling bloated at random times and sometimes for days at a time and just feeling really blahhh. Also almost the entire time I had a cold or nausea, or some sort of minor things wrong with my health. So I suspected that I had it but wasn't sure if it was just placebo effects.

I still haven't ruled out fructose malabsorption, but my specialist suggested that I wait 6 months and then if I am still not feeling better have the test which is fine with me!

My specialist can't explain why the biopsy results  changed, since they were only about 6 months later. But he did say that someone people have negative biopsies and then years later they have another biopsy and have it. Almost like people are pre-coeliac or something. I have mixed feelings about it, it's good to finally have an answer to what's wrong. Also after eating gluten free for a while I know that I can do it. But I'm a little disappointed too because I do have to be strict forever to prevent some serious health problems in the future. And eating out is a little inconvenient most of the time. Also, I'm not sure how I will be able to eat in Hong Kong, when we return to visit Toby's family since most of the vegetarian restaurants are based around gluteny products and wheat is in soy sauce and most sauces. Anyone know of other vegetarian coeliac who have travelled to Asia and managed to eat out?

So from now all of the recipes on here will be gluten free again. Although I still have a few gluteny restaurant reviews to get through first.

I joined the coeliac society straight away, and received this pack which also includes some optional extras that I paid for like the gluten free travel guide. I'm most looking forward to using the Coles discount card. Unfortunately it does contain a few items which aren't vegan like the bread and chocolate biscuits. So if you want them please let me know.


  1. what a long time to be going through all this uncertainty and ill health - hope the GF diet will make you feel better - than at least it will seem worthwhile!

  2. It must feel good to finally have a diagnosis. But such a shame you cant eat gluten :( as if being vegan isnt difficult enough without having to be gluten free too.


  3. One of those things in life that is both positive and negative, I suppose. I'm sorry that the coeliac is a reality, but am glad it's been caught properly so that you'll hopefully be feeling wonderful soon :)

  4. Sending lots of hugs your way, K.

  5. Thanks for all of your comments.

    Hopefully I will start feeling better soon and it will be worth it. Also, it's better to know early to prevent long terms health problems!